CARDcast #5 Officer from Impact Autism Ann-Marie Orlando hello and welcome to the CARDcast a podcast of the university of Florida's center for autism and related disabilities I am your host Ann-Marie Orlando Associate Director at the center and research assistant professor in the Department of Psychiatry the mission of the UF CARDcast is to share with our listeners relevant information about who we are what we do and what we can do to help you over the course of our podcast series we will be talking with members of our own staff as well as our constituents and their families service providers and researchers who are doing groundbreaking work in the field of autism we also hope to give you a fuller picture and a better understanding of autism spectrum disorder and related disabilities such as dual sensory impairments and developmental disabilities with sensory impairment thank you for joining us our guests for today are officers from the student organization impact autism we're delighted to have you talk with us today and I thought at first we would have you all introduce yourselves to our audience Sheldon Joseph so Sheldon all right Hello everyone my name is Sheldon Sheldon Joseph um a third year at the University of Florida studying uh cognitive behavioral neuroscience um I am actually the president of impact autism and um thank you for be having me here Dr Orlando hi everyone Ava Vause I'm Ava and I'm a fourth year student at the University of Florida I'm also vice president of this club and I'm majoring in cognitive and behavioral neuroscience hi I'm Tiffany's Zweifel Tiffany's Zweifel I am treasurer of impact autism I'm a first year occupational therapy doctor Amber Nipper student hi I'm Amber I am publicist for Impact autism I'm in my first year of the bhs the otd combined program so I'm doing my third year of undergrad and working in my first year of my doctorate for occupational therapy as well Daniel Chong hello everybody my name is Daniel Chong and I'm a third year undergrad student in the UF medical honors program and I am the my friends coordinator for impact Ann-Marie Orlando autism fantastic as you all can tell we have just an incredible group of young adults with us so um so Sheldon and the rest of you also please feel free to chime in tell me a little bit about the history of impact autism here at the university and how it all got started Sheldon Joseph Well from my recollection it was started by uh four college students four women at that time back in I think their goal was to there wasn't really a program that integrated UF students into the local autism beauty in gainesville so they wanted to take charge of that they wanted to you know make that connection for us students uh pretty sure their mission was you know kind of have volunteering opportunities that students can you know um have them interact with you know the local autism spectrum community here in gainesville Ann-Marie Orlando That's great so why did you all decide to join this organization Sheldon Joseph well for me it was mainly um it's kind of funny when I first came to University of Florida when you're a freshman they give you you know all these uh club meeting type things you get to go or you know see what kind of clubs you want to join or what's out there um i've always had an interest in psychology since high school after I was like a psychology class not only that back home i've uh you know have a lot of people that I'm close with that have some kind of well my sister she has adhd and I had the uh young kid who kind of like a little brother to me that was on the autism spectrum as well so um you know those kind of things led me to the club and when I joined it was very open very welcoming I liked hanging out with the kids that's one of the events that we do on one of our major events and as i continued on just meeting the people there and they were part of it it really grew on me and so I wanted to be more a part of it after that Ann-Marie Orlando that's that's great I agree that it's just a very welcoming group of students so I can understand why you would be drawn to it anybody else want to talk about why you decided to join the organization Amber Nipper I joined because I have a cousin on the spectrum that lives up north and i don't see him a lot it seemed like once every five to six years so I joined because i can't really do much for him but i wanted to help out you know kids on the spectrum and my local in my local community so i joined because I wanted to make a difference with kids around here since I can't really help my cousin that much Tiffany Zweifel I joined because I want to be a pediatric occupational therapist working with kids with autism and so when i found out about this group I was immediately drawn to it I have so much fun at our kids day outs where we have a bunch of kids with autism come and we play with them for the whole afternoon and the after the first time coming I knew I wanted to come every month has always been the highlight of my month Ava Vause So I actually joined because I was waiting at the bus stop and I had this little autism awareness ribbon on the back of my backpack and this random girl just came up to me and was like you'd be great for this club called Impact for Autism and she's like look it up on Facebook and so I did and i've been hooked ever since but i just think that's funny because I was just sitting there at the bus stop and someone randomly came up to me to tell me about it and I would have probably never known Daniel Chong about it before then I think for me it was uh more on the personal side because before I started college my my family we fostered a child from ukraine and he had a physical disability and so um I think that was my first exposure to really the kind of the world of disability in general and so when I entered college I sort of wanted to learn more about it and I think just off like autism and learning about autism was just the next step and my understanding of sort of this topic and the way I found Impact Autism was actually just through a normal tabling and I think the previous officers um a few years ago they were the ones at the table and so they were very welcoming and warm to me and I just walked up and they got me plugged into the organization and i've been hooked ever since and so i really appreciate all the experiences that i've had so far with the club and just as well as learning um just and understanding a lot more about asd and so yeah tabling it can definitely be effective whereas probably people might not think so Ann-Marie Orlando right at first thank you to everybody for sharing your entree into uh Impact Autism and autism in general Tiffany I want to go back to you because you talked about the kids day outs can you tell a little bit about that and how it all works Tiffany Zweifel yeah so um prior to COVID every month we during the school year it would be on a sunday afternoon for a couple of hours where the parents can drop off their kids and we have a bunch of volunteers from UF and all background checked and they a couple volunteers will go with each kid and the parents get to have a afternoon off and the kids have a great time we have um arts and crafts we have you know hula hoops and uh a parachute all these balls and we're at the west side park and um great time at the park and there's uh basketballs and but just whatever the kids want to do it's a their time to have um unstructured fun where we go do whatever they want to do Ann-Marie Orlando That's fun I've been to some of those kids day outs and they're very exciting and I know the kids all have a great time and so it's not just kids with autism also their siblings can come as well isn't that right Tiffany Zweifel yes sorry I forgot to say that yeah Ann-Marie Orlando That's great so um Daniel you mentioned that you are the my friends coordinator so tell us a little bit about my friends and how that all works Daniel Chong Yeah absolutely I'm the my friends coordinator which is essentially just i coordinate and host some special events that are for a specific group that is a part of impact autism called My Friends which and My Friends has targeted a lot more towards young adults who are on the spectrum as uh and so sort of different than the kids who usually partake in the kids day outs and with my friends there's just all sorts of activities that we've done in the past in fact that was actually one of the most fun parts about the club uh for me just attending those events and every time it would be different so so one day we would be learning how to knit and I actually still have the yarn and some of the stuff that we made in the needles from that I still have not practiced it though but um it was really interesting to learn that and then some days we'd have like music sort of functions and then we'd all just bring instruments and play together and uh do some beat boxing which was fun and there's maybe may or may not be videos of that as well but uh yeah my friends could be all sorts of things sometimes it is or most of the times it's hosted at the center for autism and related disabilities or the CARD office that's affiliated with um impact autism or sometimes it could be an outdoor activity however since COVID has started that's sort of been halted at least in doing the in-person activities but online it's still been just as easily accessible for people to hop online on a computer and just to watch something together or just play online games together it's my friends is just a place for um young adults who are on the spectrum in the Gainesville community um and not just in Gainesville but just sort of around to meet each other and just to make friends and so through the org or through that part of the organization i've definitely met some amazing friends amazing people who i've had great conversations with and I still talk to them um even through the phone if it's not in person Ann-Marie Orlando of course anymore that's great so I was going to ask you Amber I know that oftentimes that you as officers all come to our office and volunteer and help with so many things can you talk about Amber Nipper that part of impact autism we do a lot with CARD we um we do that they could stay out and we do our monthly meetings and we also come to CARD um to help them organize or get our stuff together we have all of our supplies at the CARD office so we you know we go there to get all the balls and the toys that we use for our events we have um a big event called stomp the swamp and we do a lot at the court office for that we have a lot of stuff there for um for that event so thank you for letting us keep our stuff there because it really helps um but we do go there a lot just to do little things to help out and to help plan our bigger events Ann-Marie Orlando great I know many of you have also been at our office and helped us to create visual supports and I know that's so that's so helpful to our staff because visual supports are very useful so amber you mentioned stop the swamp and I know Sheldon and Ava you have been involved in that the planning for that event this year can you talk a little bit about that Sheldon Joseph yeah so um for stomp the swamp because of the last year we weren't able to actually we planned everything out for and we had everything ready to go and was just getting to the date to do and then boom the pandemic hits and we have to pull everything back make sure everything was safe so we had to cancel everything but our real challenge was trying to figure out how we would want to do this now in a um you know a different society than it used to be um so I think the key thing that we're trying to go on is you know a fully virtual event very similar to the ones that we do in person but you know safer protocols so that way no one has to be in contact everyone can be safe and um secure and you know not uh have to worry about these situations mainly what's gonna happen is we will do kind of a virtual marathon where instead of actually running a marathon at the ben hill griffin stadium which we've been doing for years we would actually ask people to kind of run a marathon at their own place at their house or in their um in their in their house on treadmill if they want to run around their community anywhere that's safer for them um and we will ask them to track them with a some type of app most likely strava which can record actually the miles that you run and from there we will use that for our awards and achievements and everything else we also always include a silent auction for stop the swamp um usually our biggest the uh event there um where people you know we ask businesses from the local community or places where you can give um you can uh bid for certain items and hopefully receive them there's been a lot of great items throughout the years and we hope to get some new ones this time yeah anyone can really join it's gonna be a there's gonna be a pricing ticket to come in as there always is you could also get the price and ticket will allow you to get a shirt and we have uh yearly shirts that we do annual shirts for our events this one will be for since we couldn't do we're gonna have and we also have all of our previous year shirts available for purchase um if you would like those there's some amazing designs from back in the day they've always been a real hit with everyone everyone loves them along with those we will actually have kind of live stream activities some of our volunteers will do arts and crafts or exercises or you know dance videos something something along them it's something to keep it entertaining when the events actually going on um and now we also want to hold panels for anybody um any businesses that want to talk about something or CARD they want to have a panel to talk to people while the events going on we'll have time schedules for everything of that sort and right now we're on the whole planning process we've talked about a little bit mainly we have come to a date for when we want this to uh happen so um we've we're planning for March uh saturday March th to be the date that we actually hold stomp the swamp and um hopefully we get everything done by then and Amber Nipper it goes smoothly I have to say stop the swamp is like one of my favorite events i've been in impact autism since my freshman year so this is my third year and i i wasn't on exec until my second year in it but one of the things that really like touched me was how much money be raised my first year at impact i was on um the planning committee for stop the swamp and just to see how much money we could raise as students if this is a good student-ran event so it was very like honestly amazing how much money we raised i forget the number but it was it was a lot and it was just amazing that it was planned by students and like we really did make a big impact you know and path autism big impact but it was it was really I don't know that's one of the like main things that um like really was like wow I want to be like more involved in this I raised twelve Tiffancy Zweifel thousand one hundred and twenty dollars Ann-Marie Orlando for CARD that year you're exactly right and uh we use some of those funds to purchase safety gearboxes which contain materials to help families keep children with autism who might tend to wander and so it includes some arm bracelets includes some door alarms it has some shoe tags so that the child is found they cannot the child can be easily identified by friends or neighbors or people in the community might see the child walking around and also the alarms can help to signal the family that a child has left the area so we truly are appreciative of all of the efforts that impact autism makes to support CARD and our local autism community so I'm going to put that on my calendar now march March th that's very exciting Sheldon Joseph market down the date everyone mark it down you're ready it's going to happen absolutely so Ann-Marie Historically you know an hour before the event there are all these other activities that happen beforehand right so i know before we've had the dazzlers through performances we have had all kinds of mr hype man was there doing you know getting everybody excited for the event what folks do you have lined up this Sheldon Joseph year we might see if we can get some other dance group to come through um not entirely sure who yet we have we're still you know in contact with some of them uh maybe the dazzlers or some new groups uh we do want to get in contact with some of the football players see if they want to make their own appearances you know it would be great to see if like if they had time to you know interact with the people and um that are there because right now our football team is doing amazing um and I know a lot of people would love the chance to talk to them or have the opportunity to talk to them so that would be great um and honestly it's you know there's still a lot of things where you want to go we're trying to see what will work with this style of event that's you know live and we're trying to feel out you know what would work and what wouldn't because it's a lot different than in person where a lot of things can work but some things might not work over a you know connection based system where you know internet could be shabby for some people or they might not have the equipment to do so stuff like that so we're trying to figure that out too right so Ann-Marie Orlando and in this way too because you're doing it using distance technologies people can participate around the country around the world if they wanted to right Sheldon Joseph so so how will they get their shirts um we are planning to do kind of a you know shipping package system we're gonna go through um that process but it's basically we're gonna ship it to you you gotta provide your information and everything and that's how you get your shirts for the event Ann-Marie Orlando fantastic fantastic and then you mentioned the app it's what was the name of the app again that you'll be using to track strava Sheldon Joseph strava strata okay so people will be able to to run and track their run yeah the app will try to track the miles and actually track um the kind of path that you take and everything and then we'll use that people can send that in it has a link to share it to Facebook you would share it to our Facebook page and we will keep track of that and everything and you know post it have like you know daily um come on daily you'll all be on the event on that day so you'll see updates constantly every you know every couple seconds if people were posting these stuff and we'll probably post some make announcements like good job you ran this many miles or this person has this many miles in this sort of time or they had a bunch of people a whole team that went and did everything you know whatever they want to do we're trying to make it very uh active and fun and you know if you guys people want to send pictures with their mouths and stuff like that they can do to show that they're doing it'll be fun Amber Nipper I have this vision in my head of um it's gonna be very Facebook heavy of um the silent auction will be on Facebook and the miles will be on Facebook and what I'm hoping we could do is um get like the football players and different athletes to come and maybe do like breakout rooms like zoom or Facebook live things and like that's what I envision in my head it'll be very Facebook heavy but I think it will um still be a very fun event especially for kids that look up to these athletes you know Ann-Marie Orlando absolutely and so you all have a Facebook account right and is it just impact autism at UF is that how people could find it Amber Nipper yeah it's impact autism at UF perfect Ann-Marie Orlando perfect and then you also have a website right Amber Nipper yes it's a impact autism is a wix site website I don't know the exact url but it should pop up it's linked on our Facebook as well okay perfect so that's how people can find out about it they'll also be able to find out about it through our website our CARD website and um also on our Facebook page um and all of our social media we will be um hosting the event well you know this is great I'm very excited about this event it's it's a huge fundraiser for CARD so we're very appreciative of everyone's efforts so um before we sign off I want to find out a little bit about what your plans are for the future you know after you after you leave us here at the university what what are your plans well for me Sheldon Joseph my goal has always been trying to become a doctor I want to go to medical school and I think prior to that uh learning about psychology and learning about everything I think I'm grabbing towards Child Psychiatry I think that's my goal i've always been one of the per people that kind of had a goal and focus strictly on that goal and so I think you know all that's leading up to this point has been towards that goal and I'm trying to reach it um I think I'm doing a pretty good job so far uh i really use this opportunity just as experience to get to know people get to know what um you know families on the autism spectrum are like what their kids are like what people are like and how the community is because I don't want to be a kind of doctor that's so far into the books and the science of things that ignores what goes on with the reality of people and how you know you know community can treat them or how they have to deal with stuff in the community and I want to provide something that is very personalized something that works with them um that's kind of the mindset where i want to take all these experiences i have in college to gaining a uh you know a medical school education and then go on with that now say if i don't get to medical school I still feel like um these opportunities will help me whatever career field I'll pick or probably gravitate towards you know helping people with uh you know disabilities or anyone on the autism spectrum or you know make sure they're implemented for that whatever I do and you know still try to volunteer help out that's um that's my goal I guess Ann-Marie Orlando Well that's great Sheldon we're so appreciative and I'm I'm certain that anybody who has you for their doctor in their future will be appreciative of the perspective that you bring to help them that's fantastic thank you thank you what about you Ava Ava Vause hi so right now I'm in the application cycle for medical school and I'm really hoping on creating an inclusive environment wherever I go so hopefully I want to create like another organization while in medical school to support individuals with autism and related disabilities I'm hoping just to create more awareness because I know a lot of people know about that in the medical field so I'm just excited to do that that's so Ann-Marie Orlando important you know I think one of our missions too is just to increase the knowledge and understanding of medical providers um in the field so I'm so excited that you'll bring this experience to your future career thank you Tiffany Zweifel I just started ot school this past august so I have three more years till I'm an occupational therapist but I either want to work in the school setting or an outpatient clinic and I have such a love for working with children with autism so I I'm definitely hoping to bring my experiences from impact autism into my career as an occupational therapist Ann-Marie Orlando absolutely you know here we've started the new center for autism and neurodevelopment and house in this center is our center card but also UF rehab where we have occupational physical and speech language therapists who are here working with individuals who have autism so I really hope you have an opportunity to come here and see what's going on you'll love it that would be great what about you Amber so I am one year Amber Nipper behind Tiffany I have four years to life and with my doctor in occupational therapy and I just with my degree I hope to continue to advocate for an inclusive environment um I'm not sure what field I want to go into I do love children but I there's a lot more in this field than I thought but I do want to take my experience here and everything i've learned about autism and inclusiveness and I'm just advocating for people with disabilities and really apply it to my future job as an occupational therapist Ann-Marie Orlando Absolutely and Amber I can already see that you're doing that because you also participate in our social gainers program for UF students who have autism and so you you've put in a lot of time so you've you've gained a lot of experience so we're very excited to have you as a part of all of these efforts and Daniel I know you plan to go to medical school as well Daniel Chong yes and yeah so for part of the medical honors program it's it's like a seven year integrated program so next fall I will be matriculating into UFcom or UF college of medicine so that'll be very exciting in terms of future goals i would like to go into the field of pediatrics but I'm not super sure on the specifics of that yet I'm sort of hoping that my experiences and my time there will help me form a a better goal or more clear pathway that i should take but I think just like with everyone all the other officers as well i very much like to um advocate and just make a more um make it environments in in the medical fields that is more aware of different disabilities whether it be autism or other related disabilities as well and so I hope that my experience with impact um as well as other things like I'm trying to I'm still in the midst of learning American sign language which has been challenging but also difficult but that's been really fun to be learning and as well as part of my research is also looking into muscular dystrophy and so I'm just hoping to combine sort of all this information about disabilities and just bring it into essentially any realm that I can um help contribute to whether it be the medical field or just my community around me and so um I just appreciate all the opportunities and just the the fun experiences that I've had um just to help me find the path that I would like to go down and just so I can help other people as well as all the other officers on this board and I know we all have very similar goals in mind when it comes to these topics that Ann-Marie Orlando that does seem very true that you all have similar goals in mind and all are working toward having a role in the helping professions and so as I always say it I feel better about the future after talking with students so thank you again for giving me that feeling of optimism as we look toward the future so thank you all so much for joining us for this CARD cast we so appreciate your time and your dedication to helping individuals on the spectrum this has been a UF card cast please visit us next time when we will have an another interview with an interesting group of people I'm your host Ann-Marie Orlando and we will see you next time